As originally published on Poetry Super Highway, editor Rick Lupert, Los Angeles, California, August 2022.
Combed up Velvet
Windswept gatherings of confused moths cloud over and flitter across my speckled memory, moving, flickering candlelit flowers, held up above, hovering over such white linen, rough woven dusty with peachy sprinkles that sparkle, sparkle as a twinkling glittery, and shine. Just like dead confetti, angelic mysteries, spread out and about and unorganized as this and these, my thoughts of what was
As if there, their unheavenly scissored up, snipped and cut snowy cooled insistence, unsated and sticking to my attention lazy, bump, thump tacked heavy to jazzy sax beats beating soft, a stranger wanting more space on the train just tapping steady, beating softly at my shoulders, but I blink away your gaze and whatever there was
Toss it, again
your smile and then
a strapped touch, thick in emotion
I do not want to remember
or consider this part
of this eventual
go away, but-. Your face (damn it)
(what you said next)
and then another *thing*
that I used to like
petals down, slow and sloppy
out the window I cannot turn away
anymore
from the window and in your hair
over by the window
breathing vanilla musk kisses and Daring
Your smirk should not be in my mind, dragging
through me, too much
my old unwanted memory feeling brushed up to a thick stuff,
combed up velvet
fingertips bent,
earth spinning outside our own seams
with us and I’m still
dizzy, becoming
a bubble sipped up
dripping,
running away from what absolutely have to be dried-forever thoughts,
away, then
a drop, a
petaling sparkle, dusted
away, then I realized it, I can wait for
your return, your next visit,
your revenge, too
your comeback
of what never really was. I can.
Fingertips bent, I rake up and through past you I’m way past you and all that combed up velvet.
◆
Read about my experience being showcased on Poetry Super Highway as a Poet of the Monthright here.
I created this for my Grandma‘s birthday, remembering from my childhood that her favorite flower is the corn flower. Her brother Joe‘s favorite was poppies, and so I thought about them both as I created this image in the dead of Winter, as Christmastime quickly approaches.
Here‘s a sampling of what I was able to produce with this image. It‘s stylized but realistic, as I followed my strokes (loosely) based on a picture of an actual field here in Germany. There are wildflower fields like this all over the region where I live.
In the picture above, you see me posing with a bronze statue of a woman’s torso. Its title is straight-up: “Torso.” No frills there. As a woman who’s had a mastectomy, it strikes me that it isn’t unusual to see statues of women without heads, without arms, without legs. So I posed with her. I let her borrow my head and arms, and she gave me her two perfect breasts.
I doubt very much that this was the artist’s intention, but it was a lot of fun for me. There are a slew of pictures of me with this torso statue. I enjoyed pretending that she, a work of art, and I were sharing our body parts. Pygmalion with a twist, a major twist.
Then my knees started to get sore from getting up onto the pedestal with her and it was time for us to part ways. I tell you what, I think I got the better deal.
As a woman who recently kicked cancer (still in antibody treatment stage), there is one question I’m asked the most.
Why have you chosen to not get a boob job?
Lots of reasons, actually. I strongly suspect that if people really knew what’s involved, and what the results would actually be, they’d probably say, “Well surely, you’re not going to get your breast rebuilt, are you?” Because the process is really painful and lengthy and the results, even the best possible results, are not that great.
One of the – I think – most common misconceptions about a mastectomy is that it’s like plastic surgery. A lot of my friends were under the impression that getting a mastectomy was akin to getting a free boob job, and that the rebuilding of my breast would happen during the same surgery. But that isn’t what happens.
There is absolutely no shame in having a misconception about something and breast surgery is no different. Before I got breast cancer, I knew almost nothing about it!
Most people understand that the mastectomy is really hard. And it is. It’s an amputation, which is physically painful all by itself, but it’s also the removal of a clear and significant symbol of my being a woman, so there’s this emotional aspect of having a breast taken away.
My Mastectomy Experience
The mastectomy requires being put under. Afterwards, you wear a tourniquet and have tubes for drainage coming out of you, and an IV drip for pain. It does require one to two weeks in the hospital, and while the external scar heals in a manner of weeks (about six for me), it takes several months for the internal tissues to heal (eight months, usually more).
I have to say, being put under was for me very frightening. I didn’t know if I’d ever wake up again. So it was very present in my mind that going to the hospital to have my breast removed might be the last thing I ever did. Once I just resigned myself to that possibility, it was actually easier for me to be calm. I was on the slab, being wheeled towards the bright lights, thinking, “This might be it.” Then the drugs kicked in and I was under.
If you’ve seen The Matrix, it’s much like when the mirror is running up his arm. I felt like something was sliding up my arm, to my brain and I was instinctively responding just as Neo does. I stretched my arm out and pulled my head back, trying to keep my brain away from it. The last thing I heard was one of the male nurses say (in German), “No, don’t fight it, just-.” That was it.
When I woke up, my doctor was behind my head, pushing my bed through a hallway, jostling my shoulder. “Wake up, now. It’s time to wake up.” I did not remember any dreams, but I did sense a passage of time. I felt the lost time, just as if I had been napping.
The recovery from surgery is no small feat. It’s quite painful and once you’re strong enough, it does require physical therapy so that you don’t develop other, new problems, like a hunchback or an atrophied arm, or limited movement that becomes permanent.
Breast Reconstruction
The breast removal is one surgery, but to have the breast rebuilt, that process requires four more, even more painful surgeries. I would need to be put under four more times, I would need to live in the hospital four more times, go through physical therapy four more times.
One of the surgeries requires that part of your body is removed, so they can use that as material for your breast. Most often, they take part of the ass. Because I’m large breasted, it means my ass would have a large dent in it, a permanent one, and by the way – that Ass Dent is something that makes sitting uncomfortable for many women who get this surgery, and that pain lasts for the rest of their lives.
I’m a writer and I doodle. Sitting is my THING. If I can’t sit and write, or sit and draw, I’m in serious trouble. I also sit and think, sit and eat, sit and talk, etc. I sit. I need to be able to do that without pain, without discomfort. I do not want to go through physical therapy just so I can sit and not need drugs to do it.
All that for a lump of flesh that will not look the same as a real breast, will not hang the same and it will not feel the same. It will be numb, with no sensation whatsoever. Not ever.
I don’t need any of that. Being put under isn’t good for the body, but it also isn’t good for the brain. I need my brain.
My feeling here is that I need a fake breast about as much as I need a hole in my head. (Old American Saying, that one.) Maybe even less than, really, because I could use a little ventilation sometimes. Ahem.
How Passersby Respond to My ONE Breast
I have only one breast. I’m not afraid to show that. I don’t have a prosthetic breast either, because I feel silly with one, like a little girl padding her bra. Most of the time, people don’t even notice.
Truly, people do not see that I have only one breast, most of the time. I have a size E cup. That isn’t small.
When they do notice, it’s a very interesting thing for me to witness. The process of first observing and then coming to understand what they’re seeing is something I can read in their faces. They first glance and then – they take a second look, What did I just see there?
And in that double-take, and trying not to stare, they think, What the hell is that? -because there’s this strange lump on my body. So they take a longer look, and they realize that the strange lump on my body is actually a breast. The strange swollen protuberance is actually the normal part, it’s my breast.
Then they realize that I have just one breast, and after another second or two they realize I must have had a mastectomy.
Then they realize that a mastectomy means I had breast cancer.
And then they look at my face again. They then see that my hair is super short, not quite long enough to have bangs, and they register that, and they see, truly, that I have recently gone through cancer treatment and that I am a cancer survivor.
And then they smile.
And because I can see that thought process, what’s really clear to me is that – my NOT hiding my amputation is actually a good thing. We talk about breast cancer awareness and wear pink ribbons, but people aren’t aware, really. As I say, I was hugely ignorant before having my own experience with cancer.
I think a huge contributor of that is that too many of us choose to hide what we experience. Not just cancer or breast cancer, but just any negative or difficult life experience.
We don’t talk about it, most women DO get reconstructive surgery and according to my gynecologist, almost all regret it. For myself, I have yet to meet a single woman who felt that the reconstructive surgery was worth it. Every single one has said, “If I could go back and do it again? I wouldn’t.”
Choosing to not have reconstructive surgery wasn’t something that came quickly or easily to me. Many doctors have asked me, “So when will you begin reconstructive surgery?” Not IF, but when. I think that’s significant, because the way we talk about a thing is a direct reflection of how we think about it. It’s part of us.
What My Husband Says
It was my husband who reminded me that the Amazon Warriors would cut off a breast in order to be better archers.
That idea appeals to me!
I’ve always wanted to learn archery. So as soon as I’m strong enough, I’m going to take that up. When I explained this to one of my psychologists, he said, “But you could learn archery with two breasts.” I wanted to kick him.
What My Gynecologist Says
There’s only been one doctor who was actually relieved when I told her I wasn’t going to do it. My gynecologist.
When I told her my decision, she was downright joyous about it. She told me that she sees SO many women get it done and really, really regret it. It was her strong recommendation that I NOT do it.
She also said that especially for any woman over fifty, which is of course most common as far as breast cancer patients go, the surgery leads to lifelong pain. Every time they sit. This really got my attention.
But of course most people don’t know about all this because – really, where are all the one-breasted women? Where are they? We know that breast cancer is common. But where are all the women who have had a breast or both breasts amputated? They’re missing, vanished from our sight. Made invisible.
What My Friend Celeste Says
“Be kind to yourself.” These are words a dear friend of mine, Celeste Bradley, told me when my chemotherapy treatments began, and she continues to ding that bell for me whenever I need a reminder. It really helps me to keep this in mind, that I need to be patient and that I need to be kind to myself.
There can be a lot of healing in simply sharing our personal stories with each other. We are, after all, very social animals. Talking is how we relate and build relationships.
I really love this design. And I do know that mistletoe is a parasite. It doesn’t matter. It’s beautiful and the symbolic importance of the plant has been around since the pagans. The berries are said to be the tears of a goddess who mourned her lost love. So get the kissy-kissy stuff going!
To me, mistletoe is a warm, giggle-making plant that bears the tradition of making everyone smile, hug and kiss. Any excuse will do! If you’re wearing this, you’ll be better off than the neighborhood chimney sweep.
As a design, the color palette is striking, with bold colors that are going to look great – no matter the weather – with a slightly batik inspiration, texturally.
MiniskirtSpiral Notebook (choose paper)Scarf (140 x 140cm)A-line DressGraphic T-shirt DressComforter (choose from 5 sizes)
As someone who’s going through chemotherapy, I’ve found that people often want to know what it’s like for me. And when I start to explain it, they typically want to know more. I think it’s natural to be curious and to even have a certain fascination with what I’m experiencing.
And truly, it is fascinating. Even for the cancer patient. At least – for this one. An aunt of mine died of breast cancer when I was a kid, and I’ve learned that quite a bit has changed since then.
Not all breast cancer is the same breast cancer.
Not all breast cancer is the same – so not all chemotherapy is the same. Not these days. About thirty years ago – yes. If you had breast cancer, you went through the same chemical treatment as any other patient with breast cancer. Fortunately, we’ve learned quite a bit in the past decades and that knowledge has changed how it’s treated.
Breast cancer describes only the location. That’s it. There are many kinds of tumors that might be found there. Some grow very slowly and some are highly aggressive. Some are caused or influenced by hormones and some are not. Some tumors are common and some are rare.
So the type of breast cancer determines the chemical cocktail the patient needs. It also determines if the cancer can be beaten without chemotherapy or not. In some cases, radiation is needed. But in all cases, the tumor has to go. It cannot stay.
About my cancer.
The type of cancer I’m currently battling is extremely aggressive and it’s also very rare. When the doctors talk to me about it, they can’t help but show how excited they are. They are, in fact, scientists, and my funky tumor calls out to their secret Mad Scientist to come and play.
It’s their love of science that’s going to save my bacon, so their not-at-all-hidden excitement with the rarity of my cancer is a good thing. I’m like a hobby. Saving my life is fun!
Port or no port?
I have a port, or chemo port. Not everyone with breast cancer needs one of these. If they don’t, they get a regular IV. My port was surgically installed just below my collar bone, which means I’m a little bit of a cyborg! It also means I don’t have to go through this looking like a junkie.
I am extremely grateful for the existence of my port. When I did a bit of research to see who I should thank for this nifty thing, I discovered it’s something that has slowly been developed by many people over many decades. So my thanks goes to the diligence of many people who bothered to give a damn.
Sitting in the chair, which is much like a barber’s chair and considerably more comfortable than an airplane (check that: chemo is more comfortable than flying, folks), I’ve noticed that some of the women can stay awake and even get up to chat while they’re on chemo. They’re clearly on very different stuff. When I’m in chemo, I’m just seriously drugged. It’s hard for me to keep my eyes open.
My chemotherapy goes like this…
Because my cancer is aggressive, my chemotherapy is also aggressive. Some of the women going through chemo with me are in and out of their chairs in a couple of hours or less. Some only need maybe half an hour. Currently, a short day for me is four hours. A longer day (every third week) is six hours minimum.
When I started chemotherapy, I was on a different chemical cocktail than I am now. At that time, I was going to the hospital once every third week for chemo. But every week, I went to my gynecologist for bloodwork tests.
If the test results were poor, I’d get a call from the hospital later that day. Sometimes I’d need more medicine, sometimes I’d need to give myself a shot, and once I needed to move into the hospital and stay there under quarantine.
How it is for me right now…
I’m now taking different drugs with my chemo, so I go to the hospital two days a week. Wednesday is my weighing and bloodwork day, and Thursday is chemo day. Wednesday determines whether I’m fit enough for the full dose of chemo planned.
The chemo doesn’t hurt me. Not in the chair. I’ve noticed though that for some women, the process causes them some discomfort. For me, the discomfort and pain comes the next day. The day of – I’m just really out of it.
It’s the days following chemo where I need to get through various side effects. They aren’t fun, but I have found ways to deal with them. I think I’m doing ok.
But the most important thing? Deciding I’m going to make it. That for me was the most important step.
Her answer: “I don’t know! It just feels more personal.” This idea came to me as I was thinking about my folks and the video call we were going to have the next day.
This drawing was actually my first stab at creating a comic panel, something I’ve always wanted to do. Very hard work, but super fun.
I just really like this. I started first with the thought of fingerprints, and how each is unique. If you read my blog about My Strangest Chemo Side Effect, you know about how the chemo treatment has erased my fingerprints. So that was on my mind.
It’s winter, and while we haven’t had any snow yet, it’s something I both expect and hope to see. A quiet snowfall is peaceful. These ideas were in my head and I started drawing this. It started as a traditional doily, very classic, and changed as I worked on it.
There’s a bit of a floral slant, a bit of a peacock feather, and a bit of a compass. I don’t know what all was in my head, but I like the result.
The original artwork an illustration of actual orchids and a bird figurine that once hung on the edge of the pot (the figurine has since fallen one too many times and broken). These orchids are quite special to me, because they were a present from my mother in-law on my very first Mother’s Day. They’re now fourteen years old.
I wanted some of the products with this design to be delicate and light, and for others to be more bold. The dark background is a deep and warm brown – almost black, but not quite. I especially love how this looks on ceramic and stainless steel.
Wrap-Around Hardback Journal (choice of paper)
I decided to keep this a very limited series, so a good number of products that were once available on RedBubble have been discontinued.
I’ve shared this comic panel (my second one EVER) with some of my friends and the response has been both varied and extreme. I was so uncertain by the feedback, I considered just sticking this in a drawer forever. One close friend who loves me said this joke hurt her.
Most said they were impressed by the artwork and could intellectually get the joke and why it would be funny to ME – someone going through chemotherapy right now.
But then I realized – that’s how humor is. Humor is funny that way. Ahem.
It was my dear friend Celeste who told me to just go for it. The Gallows (chemo) Humor and the sentiment in it is something I need, and it’s my guess that other cancer patients out there will get a good laugh out of this.
Celeste says it’s important to laugh through the pain and that feels right to me. As someone fighting cancer, this is just absolutely hilarious. It rings TRUE.
Shown below are five products I’ve designed, though more options are available.
I’m showcasing the items a cancer patient generally needs when going to the hospital for another chemotherapy session. Utmost priority: a water bottle (or travel mug for tea) to stay hydrated and flush the chemo drugs through your system. If you don’t drink enough, the chemo can cause permanent damage to your bladder.
Cancer TIP: Green Tea has been proven in several scientific tests to shrink tumors. Make sure your green tea is without caffeine so that you won’t get the jitters.
Also important for a chemo patient: a scarf to stay warm, a zipper pouch to keep the pills and/or shot they give you to take home that day, and a simple bag to keep everything together, with straps that drape over the arm of your chemo chair for easy access. (Otherwise your bag is just on the floor.)
For Mother’s Day 2020 I made my mom an e-card and the flowers in a vase with a tapestry backdrop (see coasters, above) is what I made for her. She liked it so much, she suggested I try to get the image printed on physical things, like greeting cards or something, so that she could purchase some.
Her words were, “Maybe, if you got the design on something to buy, then, you know, I could maybe buy it. And then other people would know about it too, and maybe buy it, and you could make a little money.”
So everything you see here for sale is because of my mom.
This particular image is one I created using my iPad and iPencil using multiple layers. It is one of my favorite designs, and as it was made with my mom in mind, certainly one of my more feminine pieces.
What I love too is that I can now have my work on various physical items. It’s no longer something that’s just in the cloud. It’s now a pillow, a bag, a travel mug – even hangable artwork. It’s really cool.
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